New Survivorship Guidelines Available
Your tailored Survivorship Care Plan has been updated to reflect the late effects risk and related recommendations included in the latest version of the Children’s Oncology Group Long-Term Follow-Up Guidelines (Version 6, November 2023). Survivors and their families are strongly encouraged to review this information with the assistance of a healthcare professional knowledgeable about long-term follow-up care for survivors of childhood, adolescent, and young adult cancers.
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Survivor Scholarships
Did you know there are many scholarships available for childhood cancer survivors?
Research
Research on childhood cancer and its potential late effects is an ongoing process. Clinical trials are research studies that involve people. These studies may be related to new ways to screen, prevent, diagnose, and treat disease.
Survivorship Resources
Life after childhood cancer treatment can be challenging. Passport for Care has assembled some resources that can help.
There are now two ways to use the Passport For Care (PFC) Survivor Website
Clinic-generated follow-up care recommendations: Survivors working with their treating clinics may have their survivor information entered by the clinic, which in turn can provide the survivor with access to the complete PFC recommendation functions. Survivors who are not being seen by their treating clinic or whose clinic is not enrolled in the PFC may contact the PFC navigator svp-helpdesk@bcm.edu to receive assistance in enrolling in the PFC and receive access to the full PFC recommendation functions for follow-up care guidelines and resources. Access is provided via a secure access code and instructions.
User-generated follow-up care recommendations: The PFC team is now offering access to a Screening Recommendations Generator. In this pathway, a survivor, user or clinician can enter individual treatments or the complete history of treatments into the Screening Recommendations Generator and receive access to the potential late effects associated with those treatments, the recommended follow-up screenings*, access to Health Links (survivor educational information), and a list of the relevant guidelines. * Please note- some follow-up care guidelines are based on certain chemotherapy type/doses and radiation sites and doses. These will be noted in the output; however, these calculations are performed by full PFC and are not available via the publicly available Generator. To see your complete treatment summary and follow up recommendations, please contact your clinic or svp-helpdesk@bcm.edu for help
User's Guide. To ensure you get the most out of Passport for Care, we have created a User's Guide video.
