Survivorship Resources
Life after childhood cancer treatment can be challenging. There is relief in knowing that your treatment is over, but there is also some fear that you won’t be seen as frequently or followed as closely — so it is important for survivors and parents of survivors to know what to look for and how to get help with issues that could arise after cancer treatment. Below are some resources* that may be helpful. If you have specific questions, please ask your health care provider or email the PFC Survivor Helpdesk.
* The Passport for Care provides the following links as a service to survivors and their families; however, we can neither endorse any of the organizations nor ensure the accuracy and suitability of this information for your particular purposes. Survivors, family members, and others are referred to their health care providers to address any questions of accuracy, timeliness, applicability, and/or suitability of any information in the following resources.
- Children’s Oncology Group
- Children’s Oncology Group Survivorship Guidelines
- Children’s Oncology Group Long Term Follow Up Care
- National Cancer Institute - Childhood Cancers
- National Cancer Institute – Late effects
- Ped-Onc Resource Center
- Ped-Onc Resource Center Survivor issues
- Childhood Cancer guidebooks
- Childhood Cancer Survivor guidebook
- St. Baldricks Foundation
- CureSearch
- Patient Advocate Foundation
- PAF Survivorship booklet: Too Young to be Ill… A Practical Survival Guide for Caregivers of Children and Young Adults
AYA – Adolescent and Young Adult Survivorship Resources
- National Cancer Institute-AYA
- National Coalition for Cancer Survivorship (NCCS)
- American Society of Clinical Oncology (ASCO): Survivorship
- Critical Mass: The Young Adult Cancer Alliance
- Stupid Cancer
Financial and Legal Resources
- Young Adults and the Affordable Care Act
- The SAMFund for Young Adult Survivors of Cancer
- Cancer Legal Resource Center